MTC being such a rare cancer, knowledge on its treatment and management is severly limited. However promise and success has been shown in a private oncology clinic in Germany (Hallwang Private Oncology clnic) which has successfully treated and cured patients with the same type of cancer.
Brought on by his cancer, Ben also suffered with undiagnosed Cushing’s Syndrome, a hormonal disorder which almost killed him. But like his whole journey, he managed it with a brave smile on his face and only kindness for everyone he meets. As his cancer is so rare, he has been misdiagnosed and suffered through local doctor’s lack of knowledge with this cancer for his whole journey.
Ben’s cancer has now spread to other areas, including his liver which has left him with little to no treatment options from Australian Hospitals. Other than his cancer and the side effects from prescribed medications, he is relatively healthy and young and we are confident that this treatment in Germany will be able to delay progression of his illness and successfully beat his cancer. Without it though, the future isn’t great.
The German private oncology clinic costs are over $25,000K (AUD) per week and he will need to stay for up to 6 weeks for his first visit with second and third visits for further treatments later in the year… We can assume we will be looking at $300,000K over the next 12 months.
It is a huge amount of money to be paying a private clinic however, the treatments they offer are not available in Australian Hospitals. This is an end of the road stop for us and without your help it isn’t going to be possible.
Please donate what you can, (not what would make things difficult for you… Ben would hate to inconvenience anyone with his disease).
I will try and give you updates as often as possible, and thank every single one of you for being part of what I’m trying to do. Save the life of the person I love.
EVERY CENT RAISED BY THIS GO FUND ME WILL GO TO BEN’S TREATMENT AND TRAVEL COSTS IN GERMANY.
For groups or any fund raising events, please contact me directly as donations will have to deposited directly into our fund raising account.